A Fifth Season...2017

11/10/2017 06:00 PM - 10:00 PM ET

CLN2 Batten disease is a ruthless childhood condition that has stolen our children’s livelihood and then, lives.

We have devastatingly lost Noah VanHoutan, Bridget Kennicott, Ethan Gahlbeck and recently, Laine VanHoutan

all between the young ages of 10-12 to this horrific disease. Our children developed normally as toddlers; walking, talking,

and laughing. Unfortunately, they soon experienced on-going seizures and loss of muscle control including their ability

to speak, walk, and feed themselves. Currently, there is no cure for this fatal childhood disease.

 

We are hosting our 8th Annual fundraiser in honor of all four children to unmask the journey toward a cure.

A Fifth Season is Saturday, November 10th, 6:00pm at the Marriott Oak Brook.

A Fifth Season fundraiser will provide a casual yet, purposeful atmosphere, featuring music, an impressive

live and silent auctions, dinner, dessert, and open bar.  Joining for the 7th year is guest Emcee - WGN's own Ben Bradley!

 

All funds raised will go towards CLN2 Batten research via Noah’s Hope-Hope 4 Bridget, a 501(c)(3) nonprofit organization

whose mission is to provide funding for research and education in efforts to find a treatment and cure for CLN2 Batten disease.

In 2017, the FDA and the European Medicines Agency (EMA) have each approved the first-ever CLN2 Batten disease

enzyme replacement therapy called "Brineura". While this is exciting news, your donation will allow us to continue searching

for additional treatments and a CURE for CLN2 Batten disease.

Interested in sponsorship opportunities?  Please contact Kathleen Jensen at katjensen4@yahoo.com for details.

Hope on the Horizon        $10,000+

Noah the Conductor         $5,000+

Bridget the Go Getter       $2,500+

Ethan, Master of Transit    $1,000+

Princess Laine                 $500+

Have a auction item to donate?  Please contact Jennifer Jesso at jenjesso@yahoo.com for donating.

A  hotel room block has been set up for A Fifth Season. Guests of the event interested in reserving a room

should contact Marriott Oak Brook reservations at XXX to request a reservation under “A Fifth Season”

(NEED TO COMFIRM!) room block. The room block hotel rate is $99 plus tax. Rate available until 10.19.18.

On behalf of our children and  families around the world, thank you for suporting Batten disease research! 

A Fifth Season is hosted by Noah's Hope-Hope 4 Bridget, a 501(c)(3) registered charity supporting Batten disease

research and recognized by the IRS. Federal Tax ID: 47-2609776

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