Saturday, November 11th, at 5:00pm
Doubletree in Oakbrook, IL (NEW LOCATION!)
1909 Spring Road
Oakbrook, IL 60523
CLN2 Batten disease is a ruthless childhood condition that has stolen our children’s livelihood and then, lives. We have devastatingly lost Ethan Gahlbeck (age 10, 2015), Noah VanHoutan (age 11, 2016) and Bridget Kennicott (age 12, 2017) to Batten disease. And now we watch as Laine VanHoutan (age 11) continues to bravely battle against the monster we know as Batten. Our children developed normally as toddlers; walking, talking, and laughing. Unfortunately, they soon experienced ongoing seizures and loss of muscle control including their ability to speak, walk, and feed themselves. Currently, there is no cure for this fatal childhood disease.
A Fifth Season fundraiser will provide a memorable experience in a casual atmosphere. The evening will include dinner, dessert, an open bar, music, an impressive live and silent auction, and guest Emcee - WGN's own Ben Bradley!
All funds raised will go towards Batten research via Noah’s Hope-Hope 4 Bridget, a 501(c)(3) nonprofit organization whose mission is to provide funding for research and education in efforts to find a treatment and cure for LINCL Batten disease. In 2017, the FDA and the European Medicines Agency (EMA) have each approved the first-ever CLN2 Batten disease enzyme replacement therapy called "Brineura". While this is exciting news, your donation will allow us to continue searching for additional treatments and a CURE for CLN2 Batten disease.
Buy your tickets today HERE with an early bird price of $90 per person. Reserved seating & discounted tickets available when buying "Table of 10" for $800. The ticket prices increase on 10/13/17.
A limited hotel room block has been set up for A Fifth Season. Guests of the event interested in reserving a room should contact Double Tree Hotel reservations at (630) 472-6000 to request a reservation under “A Fifth Season” room block. The room block hotel rate is $109 plus tax. Rate available until 10.13.17.
Interested in sponsorship opportunities? Please contact Kathleen Jensen at firstname.lastname@example.org for details.
Hope on the Horizon $10,000+
Noah the Conductor $5,000+
Bridget the Go Getter $2,500+
Ethan, Master of Transit $1,000+
Princess Laine $500+
Have a auction item to donate? Please contact Jennifer Jesso at email@example.com for donating.
A Fifth Season is hosted by Noah's Hope-Hope 4 Bridget, a 501(c)(3) registered charity supporting Batten disease research and recognized by the IRS.
Federal Tax ID: 47-2609776